Green, McKay (Utah Valley University)
Faculty Advisor: Smith-Johnson, Amber (Utah Valley University, English)
The Center for Disease Control and Prevention has stated that "Six in ten adults in the U.S. have a chronic disease and four in ten adults have two or more" ("About Chronic Diseases," n.d.). This means that over half the U.S. population is trying to manage a chronic illness with their daily tasks. Those with chronic illnesses start with a shorter supply of energy. They are forced to focus solely on the basic necessities while ignoring the majority of their desires, since they do not have the energy. Because of this, they face serious problems when they put off managing their symptoms to manage society's perceptions instead. My main research question is this: "Are those with chronic illness essentially (mis)managing their illness due to the perceptions of society? And if so, how do we change this problem?" The impact of perception on chronic illness management has not been studied adequately. However, in spite of the paucity of research, I have confirmed through my own primary and secondary research that many with chronic illnesses abandon their required treatment regimens in favor of perception management. Society has this image of disability that is very appearance driven — wheelchair, crutches, etc. And because the vast majority of those with chronic illnesses appear outwardly healthy, they are expected to actually be healthy and function like everyone. In this process they typically push themselves too far and cause debilitating and painful flare-ups. Studies have shown that if those with chronic illness have hope for a productive life, their illness is easier to manage. This hope is best nourished by focusing on treatment management instead of perception management. The goal of my research is to introduce hope into the lives of those with chronic illnesses so that they can manage their symptoms instead of society's perceptions.